Status Epilepticus And Other Stories


It happened again.

I had a very overwhelming week; because of my atopic condition I can become quite sick from heat, and on top of dealing with the hot weather, itching, excessive perspiration and hives I was being more active than is usual for me.

On Friday night we hadn’t long gone to bed when I told D that I was experiencing an aura. I very rarely have auras and so I knew this was going to be quite severe – so I lay down and placed myself in the recovery position.

The seizure hit me like a breeze block travelling at 500mph, and my body very quickly entered a state of Status Epilepticus – a potentially life-threatening episode of continuous seizures. I don’t remember a lot about it, but D says I refused hospital in spite of the fact that I stopped breathing about seven times. He says that I immediately fell asleep when it was over. The Status Epilepticus lasted for roughly half an hour – which is quite mild.

Yesterday I was good for absolutely nothing – although I did manage to make it to the shop and get the vegetables prepped and dry-brining for the Piccalilli that my Mum loves so much. I’ll be making the actual Piccalilli later this afternoon.

I am still not fully compos mentis and haven’t been able to blog since my post about Melanie Sykes, and so there are a couple of things that I am behind with.

Firstly, I’m late with Fashion Friday – my photographic way of trying to recover from my eating disorder:

This is my “Age Of Aquarius top – so-named because of the colour, pattern and general ’60′s feel to it. It’s very comfortable in hot weather and hides a multitude of sins!

Side view, in which I seem to disappear. I need to bulk up a little if anything!

I also have to thank seventhvoice for choosing my poem as a winner in her poetry challenge. Apparently her autistic son loved it!

I’ve also been awarded another Versatile Blogger Award. Thanks Maggie!

My main point of this post though was, of course, Status Epilepticus and its potential for fatality. Many of us with epilepsy – and our loved ones – live in fear of this condition every single day.

Please, if you care, please Tweet, reblog and otherwise share my story. You might just save somebody’s life.

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About Missus Tribble

Media volunteer for Epilepsy Action (UK) and advocate for both epilepsy and autism awareness. Seamstress, cross-stitcher, sci-fi lover, ukulele player and Chelmsford's own Pickling Pagan who wants to inherit a TARDIS when she grows up. In the process of writing an as yet unnamed book, with anecdotes and information about being epileptic and autistic - and seeing the funny side!
This entry was posted in 2012, Adventures In Preserves, Born This Way, Diet And Fitness, Disability, EDNOS, Epilepsy, Health, Home Crafts, How epilepsy Can Kill, Maggie Mendus, Neurological, Status Epilepticus, Versatile Blogger Award. Bookmark the permalink.

5 Responses to Status Epilepticus And Other Stories

  1. Maggie says:

    Oh how scary. Thank you for being brave enough to post this. You are amazing. Prayers for better, better, better health. I care.

  2. It must be terrifying. I am so glad you are recovering from that episode, and so glad you have a great partner you can count on to help you through it.

  3. willowdot21 says:

    You are one of the bravest people I know of and your husband D must be even braver!! God bless and keep you both!!

  4. Merit K says:

    Glad that you are recovered for now and praying that you will find out why that is happening to you.so that you can have peace and health. I love your cute outfit and hat for your Fashion Friday!

    • Thank you so much for the kind words. I shall be taking things easy for a few days now, just to make certain that I can’t hurt myself. I’m sure that my epilepsy nurse (who I’m due to see shortly) will work with me to find a solution.

      I love that outfit too – thank you :)

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