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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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- Ewww, tofu out of date and furry! This will have to be an adaptation of @Chinghehuang's black bean & mushroom stir fry! Will still be tasty 15 hours ago
- @Sezlr Heh, we're both Geeks - and where there are Geeks there is Stuff. Lots of :) 17 hours ago
- @JeriLRyan Nice to "meet" you! Not seen you on Twitter for a while! What are you up to these days? :) 17 hours ago
- @Sezlr Your daughter should see *our* house! 17 hours ago
- @JeriLRyan Can I jump on @ayoub's bandwagon here and say hello? :) 17 hours ago
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Monthly Archives: July 2012
Gypsy Road – Part One
After my ex-partner made me homeless I chose to return to my ancestral Romani roots and hit the road for a while. After all, I had always wanted to leave my home town and I had friends throughout the British … Continue reading
How To Rock A Discworld Convention
Today I feel the need for something a bit lighter on my blog than the subjects of the last few days, so I’m going to write a piece on how to be Awesome at a Discworld Convention. The husband-shape and … Continue reading
A Beautiful Little Miracle
D was out checking the Corkscrew Hazel to see if it was producing any nuts this year (we use them in various recipes). There is a small cluster growing on the tree, but what struck him most was this gorgeous … Continue reading
Posted in Animals, Disabled Gardening, Insects, Photo Opportunities
6 Comments
When The Drugs Don’t Work
On Tuesday I had an emergency appointment with my epilepsy nurse, after he picked up the frantic message that I left on his system over the weekend. He decided not to let me wait another couple of weeks for the … Continue reading
Posted in Alcohol, English Hospitals, Epilepsy, Health, Medication, Neurological, NHS, Psychological, Seizures, Self-worth, Status Epilepticus
28 Comments
“What Can’t We Do If We’re Together?” – A Lesson Learned From Danni Warner
Okay, so I’ve had “Buffy, The Musical” going around my head for weeks now, but the title I’ve chosen is actually relevant to this blog post. This post is about strength in numbers, strength in the face of adversity, meeting … Continue reading
White Silence?
“It sounded like dread and white silence.” – Wendy Torrance ponders the meaning of autism in Stephen King’s “The Shining”. Of course, any high-functioning, verbal autist such as myself can tell you that this is not what autism means at … Continue reading
“You’re Not Really Epileptic!”
“You pretend to have seizures because you want the attention – you’re not really Epileptic at all.” I looked at my then-husband and flinched. How could he be saying this to me when – in the past – he’d witnessed … Continue reading
Posted in Abusive Behaviour, Attitudes, Epilepsy, Epilepsy Action, Health, Neurological, Seizures
10 Comments
MIA
I am still alive and well in the leafy south, but spoons have been low and I’ve been going through some fairly strong self-esteem issues. Since this blog is not the place for hosting a pity party I chose to … Continue reading
Fishing discards practice thrown overboard by EU
Reblogged from The Coastal House: EU makes compromise agreement to phase-in ban on discards from 2014, but critics say that will be too late for some species The wasteful practice of throwing away healthy and edible fish at sea will be ended … Continue reading
Posted in Uncategorized
5 Comments
Amnesia
The fog was thick inside my brain, a painful force within my head. I took the poison more than once, and in my mind a sweet refrain. “Come in, come in”, the voices said, “Come to our world where nothing … Continue reading
Posted in Born This Way, Creative Writing, Epilepsy, Health, Marriage, Medication, Neurological, Seizures
12 Comments


