There are many, many different diagnoses of Epilepsy; you may believe that it’s one generalised condition, but it isn’t. Much like Autism, “If you’ve met one person with Epilepsy you haven’t met them all”.
Thanks to Epilepsy Action on Facebook I was alerted to this moving story about baby Rafferty Binns, who has been diagnosed with a rare form of Epilepsy known as Othohara Syndrome. This is the same form of Epilepsy that killed David Cameron’s son three years ago, and the survival of this little lad is nothing short of a miracle. And just look at him – isn’t he precious?
Children like Rafferty offer hope to the despairing. They tell you that your situation could be worse. They are with us to say “Hey, I’m surviving this; you’ll be fine”.
Of course, it takes special parents to believe in special children like Rafferty – and Nina and Jon Binns are no exception. In fact they are an inspiration. They have been through hell and back, and emerged triumphant.
This will be an ongoing battle for the family, but the hope is there. News in today is that Rafferty has now given his first smile!
Who has inspired you today?
Article linked to with permission of Jon Binns, Rafferty’s adoring father.