This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a few days ago, from the family member of a fellow former patient enquiring as to whether or not I’d found any further information, I decided to put this here before rambling on about today’s visit.
For those not in the know, the last appointment that Frank had booked me in for was suddenly cancelled due to illness, rapidly followed by a new appointment with the head (no pun intended) neurologist. That alone was ominous, and apparently people have been dismissed with an irritated “He’s just not here” when they’ve asked.
I have a history with the hospital I attend concerning a refusal to be fobbed off or mucked around. When I had my dental surgery two years ago I was told for the third time that I’d have to go home due to an emergency – and I politely refused to leave until my surgery was performed. This led to a sudden “cancellation” falling out of management’s backside. I ask questions with every intention of not letting up until I get answers and anybody who has ever had to deal with me knows this.
I am delighted to inform my readers, and those who have wondered themselves about Frank, that the neurologist smiled and told me the following:
“He left… but he’s fine.”
D and I smiled – relieved – and thanked him; we then drove off to annoy a friend who lives in an area named for Viking/Norse Gods and their words for certain things. Please tell me when “Midgard” (Earth) became “Midguard”? I don’t think Thor would be pleased!
At least we got our Dungeons And Dragons box set back. Our friend has only had it for about four years! Still, we gave them a gazillion Star Wars comics, so they’re happy and I get to relive my childhood crush on Hank (the Ranger).
So, on to the boring stuff now.
Today, instead of Broomfield, I was treated to a visit at this beautiful old hospital in Maldon. I like old buildings and I like Maldon, so this was a rare treat for me to be seen here at my neurologist’s “other clinic” (he wants to see me in Broomfield in six months, during which I’ll inform him that I want to see him in Maldon).
Unlike Broomfield, the waiting room was empty (apart from a childminder who was looking after a patient’s two little angels) and the waiting time wasn’t long at all. I’d only just reached Chapter Four of my new Kindle book (Deeper, written by a lady many of you know as butimbeautiful and which already has me hooked) when my name was called.
As it stands for now, my medication is being kept as is, with the possible introduction of a new drug in six months (my neurologist is thinking that, with generalised seizures such as mine, a cocktail to cover all types of seizure would be appropriate – and we’ve already established which drugs have unacceptable side effects). I am happy with this. I have never had much to do with Doctor Z because I had Frank, but while they are looking for a new Epilepsy Nurse I am learning to trust the man. I saw a different side of him today; nice quiet clinic, not being rushed… he wasn’t as brusque as he can be at Broomfield (which is constantly overbooked and busy). Believe me, I remember the stress of having to rush in a nursing home. It’s like a production line and everybody hates treating patients that way – but sometimes there is no choice.
To cut a long story short (“Too late!”, I hear you cry) my brain hasn’t fallen out of my ears or anything drastic like that and my neurologist is happy with the effect this current drug (Phenytoin) is having on me.
Also, please buy a copy of Deeper!