This work is licensed under a Creative Commons Attribution-NoDerivs 3.0 Unported License.
Press EnquiriesI can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.
That about.me Thingy
Life On The Edge Of The Sofa
I'm a 42 year old writer, living with my husband and a large collection of tarantulas in Essex. I have an adult son with severe autism and learning disabilities, I'm a media volunteer for Epilepsy Action, and - in spite of a disability preventing me from continuing in my career as a care assistant (I had also hoped to train as a staff nurse) - I give back what I can to my community by volunteering at the local library a few times a week. I am passionate about human and animals rights, and believe that all lives matter. I'm known locally as the eccentric Doctor Who fan who always wears fandom t-shirts and a smile. Oh; I'm also known as Spider Lady.
I enjoy baking, reading and gardening, and I have extensive ways in which to use garden ingredients for pickles and sauces. I've spent this year regaining my health after a near-fatal illness last summer, and encourage others to embrace life in every way they can.
Come Tweet With MeMy Tweets
The Big Blog Collection
Category Archives: Acceptance
M.E., CFS, Yuppie Flu, Chronic Exhaustion. Call it what you will; you still never really expect it to happen to you. You’re fit; you’re healthy; you’re active. It’s something that happens to other people. Except for when it does happen … Continue reading
The title I’ve selected for this blog is something that I said during a film interview. I am unable to share the video here because I’ve not yet received permission, but it was a video filmed by Epilepsy Action last … Continue reading
I can walk; I can even jog a little, and dance in short bursts. I can get to the local shops and back and sometimes I don’t even need my walking stick. What I cannot do, however, is have days … Continue reading
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
Growing up is something that I tried to avoid for all of my life until now. I inherited Romani blood which runs hot in my veins; I am an autumn child who has spent many years floating free with no … Continue reading
Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading
For a person who is both epileptic and autistic, it is very difficult to separate and analyse behaviours that might be due to one or the other or even both. Am I having a seizure because I’ve also suffered an … Continue reading
I can be positive all I like concerning my neurological issues, but of course there are restrictions on what I can and cannot do. Everybody has their stone walls and glass ceilings, whoever they are and regardless of health, fitness … Continue reading
This morning I checked in on Facebook (which I very rarely do) and discovered a message from a delightful young lady who shall remain anonymous. The message came from somebody on Twitter, who has recently been diagnosed with both epilepsy … Continue reading