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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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Category Archives: Autistic Behaviours
Introspection
Since the sectioning of my son I seem to have retreated into myself a little bit. Emails have not been responded to – if they were ever looked at – and blogs have gone unvisited. I’ve been communicating mostly via … Continue reading
Posted in 2013, About The Carer, Adapting, Anxiety, Autism, Autistic Behaviours, Autistic Meltdown, Depression, Epilepsy, Facebook, Family, Friends, Health, Heightened Awareness, Hyperacusis, I Love Autism Kids, Love, Marriage, My Son, Neurological, Not A Supermarket Tomato, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychological, Reading, Real Life Horror, Sensory Overload, Social Anxiety, Strength, The Black Dog, The Dark Side Of Autism, Vulnerability, Women's Institute
8 Comments
Baby Love
In a small maternity delivery room in Cheltenham, long ago, an exhausted young woman lay in a bed soaked with blood, sweat, amniotic fluid and tears; she had in her arms the most precious and beautiful thing that she had … Continue reading
“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”
That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading
Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca
22 Comments
Sexuality And Disability
In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading
Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog
14 Comments
Autism: I’m Not Crazy, But Sometimes My Brain Skips A Beat
Appearances can be deceptive. Outwardly, to the bystander, I’m the smiling, friendly blonde lady who is confident in herself and still retains an appearance of youthfulness and some of the good looks she had in her late teens to mid … Continue reading
Autism In Adulthood
To many people I’m the bubbly, friendly, excitable and somewhat eccentric lady who knows how to let go and have fun. I have plenty of friends, I’m a gifted writer and I’m talented in the arts of pickling, preserving, relish … Continue reading
Overexcitement: Catalyst Or Symptom?
For a person who is both epileptic and autistic, it is very difficult to separate and analyse behaviours that might be due to one or the other or even both. Am I having a seizure because I’ve also suffered an … Continue reading
The Weekend That Was
Friday: Just for a change I was completely organised and had to do very little packing on Friday morning (toothbrush, toothpaste, hairbrush, laptop). All of my family’s Christmas gifts were wrapped and packed, I’d planned my weekend wardrobe (although – … Continue reading
Posted in 2012, Adventures In Preserves, Always Look On The Bright Side Of Life, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Choose Life, Christmas, Cookery, Cross-stitch, Doctor Who, Doctor Who Scarf, Fandom, Fezes Are Cool, Food, Friends, Geekiness, Hobbies, Homemaking, Hope Orchard, I Stitch So I Don't Stab Stupid People, Kitchen Witchy, Not A Supermarket Tomato, Photographs, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, The Dark Side Of Autism, The Things I Do In The Name Of Fandom!, Winter
13 Comments
Autism Families And The News
I’m just going to come right out and say it: I am terrified of my autistic son. He is sixteen years old, stands at about five foot eight and has the strength of three grown men. The slightest sign of … Continue reading
Restrictions Of Epilepsy And Autism
I can be positive all I like concerning my neurological issues, but of course there are restrictions on what I can and cannot do. Everybody has their stone walls and glass ceilings, whoever they are and regardless of health, fitness … Continue reading
Posted in Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Carers, Conventions, Cross-stitch, Disability, Discworld, Doctor Who, Epilepsy, Epilepsy Awareness, Family, Fandom, Fun, Geekiness, Health, Home, Marvel Characters, Neurological, Patience Is A Virtue, Positivity, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Seizures, Sir Terry Pratchett, Strength, Tenacity, Vulnerability
19 Comments


