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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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- Baby Love wp.me/p1XQ3w-n4 1 day ago
- Doctor Who Review: Nightmare in Silver wp.me/p1XQ3w-mT 1 day ago
- Autistic Son Psyched In A Bad Way wp.me/p1XQ3w-mQ 2 days ago
- @marc_schuster What's not to like about dark humour, silly humour and total farce? I think they'll love it :) 2 days ago
- @marc_schuster - Apparently my book club are set to read The Grievers so it can be reviewed in July. I'll let you know what they think :) 2 days ago
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Category Archives: Discomfort
Chronic Fatigue Syndrome, As Told By A Sufferer
As I believe I may have mentioned before, my sister – Serena Lesley – has been battling CFS since late 2011. This is a subject that I have been wanting to cover, but as I am completely unqualified to talk … Continue reading
Goodbye To Compass
This morning we had our final meeting with Sheila, our Compass counsellor. Since that first meeting, when I was still so withdrawn and suspicious of strangers, it hasn’t really felt like counselling at all; it’s been more like visiting a … Continue reading
Posted in 2012, Accomplishments, Adapting, Alcohol, Anxiety, Body Image, Cooking, Counselling, Diet And Fitness, Disability, Discomfort, Doctor Who, Doctor Who Scarf, EDNOS, Epilepsy, Epiphany, Exercise, Fear, Food, Food Experimentation, Health, Home, Home Crafts, Humour, Kitchen Witchy, Life Plans, Milestones, Pickling, Positivity, Progress, Psychological, Self-Realisation, Self-worth, Tenacity, Therapy, Tribble Towers
4 Comments
Epilepsy Won’t Hold Me Back Any More!
I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading
Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation
14 Comments
Status Epilepticus. Again
It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading
Posted in Alcohol, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Born This Way, Carers, Disability, Discomfort, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Heightened Awareness, How epilepsy Can Kill, Medication, Neurological, NHS, Pain, Perception, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Real Life Horror, Seizures, Self, Status Epilepticus, Symptoms, The Ignorance Of Strangers
27 Comments
Bedbound
When I broke my toe back in April, I was quite happy to stay in bed for the first few weeks because that’s what I always tried to do anyway. I was weak from my eating disorder, drained by constant … Continue reading


