Category Archives: English Hospitals

Staring Without Seeing, And Other Stories


That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted – sometimes … Continue reading

Posted in "Mutants", 2013, Adapting, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Body Image, Boobs, Born This Way, Disability, Doctor Who, English Hospitals, Epilepsy, Epilepsy Awareness, Health, Heightened Awareness, Injuries, Kindle | 4 Comments

Frank La Rocca, Epilepsy Nurse


This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading

Posted in "Mutants", 2013, Accomplishments, Always Look On The Bright Side Of Life, Book, butimbeautiful, Deeper, Disability, English Hospitals, Epilepsy, Frank La Rocca, Friends, Health, Kindle, Maldon, Medication, Milestones, Neurological, Not A Supermarket Tomato, Positivity, Progress, Proud To Be Me, Seizures | 5 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 24 Comments

Status Epilepticus. Again


It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading

Posted in Alcohol, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Born This Way, Carers, Disability, Discomfort, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Heightened Awareness, How epilepsy Can Kill, Medication, Neurological, NHS, Pain, Perception, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Real Life Horror, Seizures, Self, Status Epilepticus, Symptoms, The Ignorance Of Strangers | 27 Comments

And So It Begins


Long ago, in my early twenties, my grandmother and I used to meet for lunch on a weekly basis. We would set the world to rights, catch up with each other and I’d tell her about my job. She always … Continue reading

Posted in "Mutants", Accomplishments, Autism, Autism Awareness, Blogging, Book, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Publishing | 22 Comments

The Importance Of Diagnosis


When you have any kind of physical or neurological “disorder” (and I use that term very loosely) it’s vital to have a proper diagnosis to keep that “disorder” from completely ruining your life. If there is no medication for your … Continue reading

Posted in "Mutants", Acceptance, Atopic Syndrome, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Fear, Heightened Awareness, Hyperacusis, Hyperkenesis, Living With Atopic Syndrome, Neurological, Not A Supermarket Tomato, Positivity, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychiatric, Psychological, Symptoms, Validation | 9 Comments

Discworld Convention, Water Fights And Laughing Through Epilepsy


The husband-shape and I are now back on Roundworld, after having fun at the Discworld Convention. Truly, it’s wonderful to escape the real world every couple of years and catch up with old friends whilst meeting new ones. The Discworld … Continue reading

Posted in Accomplishments, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Clothes And Cosplay, Confidence, Disability, Discworld, English Hospitals, Epilepsy, Epilepsy Awareness, Excitement, Family, Fandom, Friends, Health, Injuries, Jo Grant, Katy Manning, Kitchen Witchy, Neurological, Positivity, Proud To Be Me, Refusing To Be Beaten, Seizures, Sir Terry Pratchett, Status Epilepticus, Tales Of The Rambling Rose, The Things I Do In The Name Of Fandom! | 16 Comments

When The Drugs Don’t Work


On Tuesday I had an emergency appointment with my epilepsy nurse, after he picked up the frantic message that I left on his system over the weekend. He decided not to let me wait another couple of weeks for the … Continue reading

Posted in Alcohol, English Hospitals, Epilepsy, Health, Medication, Neurological, NHS, Psychological, Seizures, Self-worth, Status Epilepticus | 28 Comments

Epilepsy And Autism – When Two Worlds Collide


Disclaimer: I am not paid to post links to either Epilepsy Action or the National Autistic Society. The fact that I can create links to take people to sites that can offer the advice and support that they are looking … Continue reading

Posted in "Mutants", Anxiety, Attitudes, Autism, Autism Awareness, Blogging, Born This Way, Carers, Disability, English Hospitals, Epilepsy, Epilepsy Action, Health, How epilepsy Can Kill, Love, Neurological, NHS, Seizures, Status Epilepticus | 3 Comments

The True Face Of Epilepsy


My husband and I just returned from a three hour stay in A&E because I had a seizure which rapidly descended into¬† Status Epilepticus. The story and the photographs that you are going to see will not be pretty, so … Continue reading

Posted in English Hospitals, Epilepsy, Epilepsy Action, Health, Illness, Injuries, Neurological, NHS, Seizures, Status Epilepticus | 8 Comments