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Press EnquiriesI can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.
That about.me Thingy
Life On The Edge Of The Sofa
I'm a 42 year old writer, living with my husband and a large collection of tarantulas in Essex. I have an adult son with severe autism and learning disabilities, I'm a media volunteer for Epilepsy Action, and - in spite of a disability preventing me from continuing in my career as a care assistant (I had also hoped to train as a staff nurse) - I give back what I can to my community by volunteering at the local library a few times a week. I am passionate about human and animals rights, and believe that all lives matter. I'm known locally as the eccentric Doctor Who fan who always wears fandom t-shirts and a smile. Oh; I'm also known as Spider Lady.
I enjoy baking, reading and gardening, and I have extensive ways in which to use garden ingredients for pickles and sauces. I've spent this year regaining my health after a near-fatal illness last summer, and encourage others to embrace life in every way they can.
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Category Archives: English Hospitals
“What happened to your eye?” Excuse me? I’m here because I’ve been vomiting blood and you want to talk about my eye? To do a quick rewind: I was put on Naproxen for the pain in my feet. Not only … Continue reading
That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted – sometimes … Continue reading
This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading
That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading
It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading
Long ago, in my early twenties, my grandmother and I used to meet for lunch on a weekly basis. We would set the world to rights, catch up with each other and I’d tell her about my job. She always … Continue reading
When you have any kind of physical or neurological “disorder” (and I use that term very loosely) it’s vital to have a proper diagnosis to keep that “disorder” from completely ruining your life. If there is no medication for your … Continue reading
The husband-shape and I are now back on Roundworld, after having fun at the Discworld Convention. Truly, it’s wonderful to escape the real world every couple of years and catch up with old friends whilst meeting new ones. The Discworld … Continue reading
On Tuesday I had an emergency appointment with my epilepsy nurse, after he picked up the frantic message that I left on his system over the weekend. He decided not to let me wait another couple of weeks for the … Continue reading