Category Archives: Epilepsy Action

“You Should Get A Job…”


“… And then you’d be getting paid for something worthwhile complaining about.” I looked at her; a pretty woman with blonde hair, a stinky attitude and a smug expression on her face. I stand some inches taller than she, and … Continue reading

Posted in "Mutants", 2013, Always Look On The Bright Side Of Life, Animal Neglect, Animals, Attitudes, Barking, Born This Way, Bullies, Bullying, Cruelty, Disability, Disability Aids, Disablism, Discomfort, Dogs, Dreams, Emotional Pain, Epilepsy, Epilepsy Action, Epilepsy Awareness, Injuries, Medication, Neurological, Not A Supermarket Tomato, Nuisance, People, Personal Goals, Pets, Proud To Be Me, Rant, Seizures, Self, Stupidity Gets A Tag Now, The Ignorance Of Strangers, Wheelchairs | 36 Comments

Epilepsy: Don’t Let It Eat You


The title I’ve selected for this blog is something that I said during a film interview. I am unable to share the video here because I’ve not yet received permission, but it was a video filmed by Epilepsy Action last … Continue reading

Posted in "Mutants", 2013, Acceptance, Attitudes, Epilepsy, Epilepsy Action, Epilepsy Awareness | 15 Comments

Stubborn


Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

The Fall Of An Epileptic


Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 24 Comments

I Have Epilepsy. I Am Not Crazy


Over the years I have heard some truly ridiculous theories – and even phobias – concerning epilepsy. All of those ridiculous statements concerning radiation, or a troubled pregnant mother and whatever else is out there; I’ve heard it all and … Continue reading

Posted in "Mutants", Abusive Behaviour, Epilepsy, Epilepsy Action, Epilepsy Awareness | 10 Comments

An Overview Of 2012


Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading

Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule | 21 Comments

Epilepsy Won’t Hold Me Back Any More!


I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading

Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation | 14 Comments

Status Epilepticus. Again


It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading

Posted in Alcohol, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Born This Way, Carers, Disability, Discomfort, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Heightened Awareness, How epilepsy Can Kill, Medication, Neurological, NHS, Pain, Perception, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Real Life Horror, Seizures, Self, Status Epilepticus, Symptoms, The Ignorance Of Strangers | 27 Comments

And So It Begins


Long ago, in my early twenties, my grandmother and I used to meet for lunch on a weekly basis. We would set the world to rights, catch up with each other and I’d tell her about my job. She always … Continue reading

Posted in "Mutants", Accomplishments, Autism, Autism Awareness, Blogging, Book, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Publishing | 22 Comments