Category Archives: Epilepsy Action

Stubborn

Posted on April 25, 2013 by

Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading →

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

The Fall Of An Epileptic

Posted on March 25, 2013 by

Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading →

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”

Posted on February 25, 2013 by

That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading →

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 22 Comments

I Have Epilepsy. I Am Not Crazy

Posted on January 1, 2013 by

Over the years I have heard some truly ridiculous theories – and even phobias – concerning epilepsy. All of those ridiculous statements concerning radiation, or a troubled pregnant mother and whatever else is out there; I’ve heard it all and … Continue reading →

Posted in "Mutants", Abusive Behaviour, Epilepsy, Epilepsy Action, Epilepsy Awareness | 10 Comments

An Overview Of 2012

Posted on December 30, 2012 by

Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading →

Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule | 21 Comments

Epilepsy Won’t Hold Me Back Any More!

Posted on December 14, 2012 by

I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading →

Posted in Epilepsy, Neurological, Creativity, Confidence, Self-worth, Health, Love, Family, Christmas, Homemaking, Home Crafts, Food, Adventures In Preserves, Accomplishments, 2012, Friends, Refusing To Be Beaten, Milestones, Life Plans, Cross-stitch, Tenacity, Strength, Disabled Gardening, Memories, Positivity, Adapting, Attitudes, Cookery, Cooking, Hobbies, I Stitch So I Don't Stab Stupid People, Self, Navel Gazing, Exercise, Patience Is A Virtue, Aspirations, Always Look On The Bright Side Of Life, Marriage, Epilepsy Action, Therapy, Born This Way, Proud To Be Me, Proud To Be Autistic, Seizures, Fear, Medication, Epilepsy Awareness, Non Fiction, Living With Asthma, Living With Atopic Syndrome, Pain, Discomfort, Validation, Epiphany, Counselling, Self-Realisation, Progress, Food Experimentation, Choose Life | 14 Comments

Status Epilepticus. Again

Posted on November 21, 2012 by

It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading →

Posted in Alcohol, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Born This Way, Carers, Disability, Discomfort, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Heightened Awareness, How epilepsy Can Kill, Medication, Neurological, NHS, Pain, Perception, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Real Life Horror, Seizures, Self, Status Epilepticus, Symptoms, The Ignorance Of Strangers | 27 Comments

And So It Begins

Posted on November 14, 2012 by

Long ago, in my early twenties, my grandmother and I used to meet for lunch on a weekly basis. We would set the world to rights, catch up with each other and I’d tell her about my job. She always … Continue reading →

Posted in "Mutants", Accomplishments, Autism, Autism Awareness, Blogging, Book, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Publishing | 22 Comments

The Importance Of Diagnosis

Posted on November 5, 2012 by

When you have any kind of physical or neurological “disorder” (and I use that term very loosely) it’s vital to have a proper diagnosis to keep that “disorder” from completely ruining your life. If there is no medication for your … Continue reading →

Posted in "Mutants", Acceptance, Atopic Syndrome, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Fear, Heightened Awareness, Hyperacusis, Hyperkenesis, Living With Atopic Syndrome, Neurological, Not A Supermarket Tomato, Positivity, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychiatric, Psychological, Symptoms, Validation | 9 Comments

Insomnia And Epilepsy

Posted on October 28, 2012 by

I am never awake at this time of the morning. Well, not usually. Sometimes I simply wake for no good reason and can’t get back to sleep again. I’ll get back on that subject in a moment. Firstly I wanted … Continue reading →

Posted in Epilepsy, Creativity, Doctor Who, Health, Homemaking, 2012, Cross-stitch, Disabled Gardening, Positivity, Disability, Attitudes, Hobbies, I Stitch So I Don't Stab Stupid People, Alcohol, Epilepsy Action, Therapy, Proud Parent Of An Autistic Child, Proud To Be Me, Proud To Be Autistic, Seizures, I Love Autism Kids, Medication, Epilepsy Awareness, Symptoms, Living With Asthma, Living With Atopic Syndrome, Engagement | 3 Comments