Category Archives: Epilepsy Awareness

Stubborn

Posted on April 25, 2013 by

Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading →

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

Turning Japanese And Cross-Stitch Flowers

Posted on March 28, 2013 by

I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading →

Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures | 26 Comments

The Fall Of An Epileptic

Posted on March 25, 2013 by

Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading →

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

How I Saved A Life

Posted on February 27, 2013 by

Disclaimer: This piece is not about blowing my own trumpet. I am writing this to prove a point – that people with disabilities can still make an important contribution to society. Colin Brewer, councillor for a Cornwall constituency, believes that … Continue reading →

Posted in "Mutants", Abuse, Alzheimers, Attitudes, Autism, Autism Awareness, Born This Way, Bullying, Colin Brewer, Dementia, Disability, Epilepsy, Epilepsy Awareness, Harrassment, Neurological, Not A Supermarket Tomato, Proud To Be Autistic, Proud To Be Me, Real Life Horror, The Ignorance Of Strangers, Unacceptable Behaviour | 32 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”

Posted on February 25, 2013 by

That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading →

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 22 Comments

Epilepsy, Disability And Idiocy

Posted on February 17, 2013 by

“MOVE IT!” I had just hobbled off the coach, en route to my home town to visit with my son. London Victoria is where I had to change to a different coach, and I was looking forward to the two-hour … Continue reading →

Posted in Abuse, Abusive Behaviour, Anxiety, Attitudes, Autism, Autism Awareness, Body Image, Book, Born This Way, Bullying, Disability, Discomfort, Epilepsy, Epilepsy Awareness, Harrassment, Health, Hope Orchard, Illness, Neurological, Not A Supermarket Tomato, Perception, Proud To Be Autistic, Reading on the move, Seizures, Self-worth, Tales Of The Rambling Rose, The Ignorance Of Strangers, Travel, Travelling, Unacceptable Behaviour, Vulnerability | 32 Comments

Sexuality And Disability

Posted on February 13, 2013 by

In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading →

Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog | 14 Comments

I Have Epilepsy. I Am Not Crazy

Posted on January 1, 2013 by

Over the years I have heard some truly ridiculous theories – and even phobias – concerning epilepsy. All of those ridiculous statements concerning radiation, or a troubled pregnant mother and whatever else is out there; I’ve heard it all and … Continue reading →

Posted in "Mutants", Abusive Behaviour, Epilepsy, Epilepsy Action, Epilepsy Awareness | 10 Comments

An Overview Of 2012

Posted on December 30, 2012 by

Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading →

Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule | 21 Comments

Overexcitement: Catalyst Or Symptom?

Posted on December 15, 2012 by

For a person who is both epileptic and autistic, it is very difficult to separate and analyse behaviours that might be due to one or the other or even both. Am I having a seizure because I’ve also suffered an … Continue reading →

Posted in "Mutants", Acceptance, Adapting, Autism, Autism Awareness, Autistic Behaviours, Epilepsy, Epilepsy Awareness, Not A Supermarket Tomato | 1 Comment