Category Archives: Epilepsy

Stubborn

Posted on April 25, 2013 by

Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading →

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

Epilepsy and Blogging

Posted on April 21, 2013 by

Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading →

Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength | 12 Comments

Turning Japanese And Cross-Stitch Flowers

Posted on March 28, 2013 by

I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading →

Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures | 26 Comments

The Fall Of An Epileptic

Posted on March 25, 2013 by

Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading →

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

The Ultimate Devotion

Posted on March 15, 2013 by

I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading →

Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing | 24 Comments

Epileptic Wave

Posted on March 11, 2013 by

As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it towards the shore … Continue reading →

Posted in "Mutants", Born This Way, Creative Writing, Epilepsy, Neurological, Seizures | 5 Comments

How I Saved A Life

Posted on February 27, 2013 by

Disclaimer: This piece is not about blowing my own trumpet. I am writing this to prove a point – that people with disabilities can still make an important contribution to society. Colin Brewer, councillor for a Cornwall constituency, believes that … Continue reading →

Posted in "Mutants", Abuse, Alzheimers, Attitudes, Autism, Autism Awareness, Born This Way, Bullying, Colin Brewer, Dementia, Disability, Epilepsy, Epilepsy Awareness, Harrassment, Neurological, Not A Supermarket Tomato, Proud To Be Autistic, Proud To Be Me, Real Life Horror, The Ignorance Of Strangers, Unacceptable Behaviour | 32 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”

Posted on February 25, 2013 by

That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading →

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 22 Comments

Epilepsy, Disability And Idiocy

Posted on February 17, 2013 by

“MOVE IT!” I had just hobbled off the coach, en route to my home town to visit with my son. London Victoria is where I had to change to a different coach, and I was looking forward to the two-hour … Continue reading →

Posted in Abuse, Abusive Behaviour, Anxiety, Attitudes, Autism, Autism Awareness, Body Image, Book, Born This Way, Bullying, Disability, Discomfort, Epilepsy, Epilepsy Awareness, Harrassment, Health, Hope Orchard, Illness, Neurological, Not A Supermarket Tomato, Perception, Proud To Be Autistic, Reading on the move, Seizures, Self-worth, Tales Of The Rambling Rose, The Ignorance Of Strangers, Travel, Travelling, Unacceptable Behaviour, Vulnerability | 32 Comments

Sexuality And Disability

Posted on February 13, 2013 by

In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading →

Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog | 14 Comments