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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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- An Open Letter To My Son wp.me/p1XQ3w-nw 21 hours ago
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- @marc_schuster Thank you! I'm rather pleased given that it's my first article! Thanks for sharing :) 5 days ago
- What Next For Doctor Who? whatculture.com/tv/what-next-f… via @whatculture 5 days ago
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Category Archives: Family
An Open Letter To My Son
My dear Rhys; my beautiful son, I hope that, one day, you will understand and that you will forgive me. You won’t understand why I kept falling over and “going to sleep”. You will also not understand why I had … Continue reading
Posted in 2013, Autism, Autistic Temperament, Emotional Pain, Family, Health
5 Comments
Introspection
Since the sectioning of my son I seem to have retreated into myself a little bit. Emails have not been responded to – if they were ever looked at – and blogs have gone unvisited. I’ve been communicating mostly via … Continue reading
Posted in 2013, About The Carer, Adapting, Anxiety, Autism, Autistic Behaviours, Autistic Meltdown, Depression, Epilepsy, Facebook, Family, Friends, Health, Heightened Awareness, Hyperacusis, I Love Autism Kids, Love, Marriage, My Son, Neurological, Not A Supermarket Tomato, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychological, Reading, Real Life Horror, Sensory Overload, Social Anxiety, Strength, The Black Dog, The Dark Side Of Autism, Vulnerability, Women's Institute
8 Comments
Baby Love
In a small maternity delivery room in Cheltenham, long ago, an exhausted young woman lay in a bed soaked with blood, sweat, amniotic fluid and tears; she had in her arms the most precious and beautiful thing that she had … Continue reading
Wedding Bells
This time last year my Bridesmaid and I were being pampered by my lovely hairdresser, who had opened the salon especially for us, while my friend Lisa rushed around making tea and sandwiches for the assembled hoardes of Ghengis Kahn … Continue reading
Posted in Anniversaries, Family, Fandom, Friends, Homemaking, Love, Marriage, Tribble Towers
19 Comments
Epilepsy and Blogging
Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading
Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength
12 Comments
Chronic Fatigue Syndrome, As Told By A Sufferer
As I believe I may have mentioned before, my sister – Serena Lesley – has been battling CFS since late 2011. This is a subject that I have been wanting to cover, but as I am completely unqualified to talk … Continue reading
An Overview Of 2012
Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading
Posted in Autism, Epilepsy, Neurological, Confidence, Self-worth, Health, Family, Yule, Home Crafts, Kitchen Witchy, 2012, Friends, Refusing To Be Beaten, Body Image, Geekiness, Cross-stitch, Disabled Gardening, Memories, Positivity, Disability, Attitudes, Cooking, Home, Wedding Gown, Hobbies, I Stitch So I Don't Stab Stupid People, EDNOS, Self, Psychological, Injuries, Exercise, Diet And Fitness, Writing, What Not To Do In The Kitchen, Always Look On The Bright Side Of Life, Making A Lovely Mess, Wedding, Marriage, Epilepsy Action, Born This Way, Proud To Be Me, Proud To Be Autistic, Status Epilepticus, Seizures, Medication, Discworld, Tales Of The Rambling Rose, Girl On Film, Epilepsy Awareness, Fun, Winter, Not A Supermarket Tomato, Self-Realisation, Progress, Fezes Are Cool, Pickling, Courgettes
21 Comments
The World’s Oldest Dog
Over the Christmas period, I thought I’d bring you some stories from my childhood that still warm my heart today. Aside from a few bad memories my upbringing was full of life, love and laughter – largely thanks to my … Continue reading
Epilepsy Won’t Hold Me Back Any More!
I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading
Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation
14 Comments
It’s That Time Of Year Again!
It’s that time of year again, when we return to my hometown of Cheltenham to visit my family. As usual Mum will have tacky singing, dancing Christmas stuff invading her living room (says the girl with the talking Dalek and … Continue reading
Posted in 2012, A Madman With A Box, Adipose, Bohemian Doctor, Christmas, Cyberman, Dalek, Doctor Who, Doctor Who Scarf, Family, Fandom, Fedora, Fezes Are Cool, Friends, Fun, Geekiness, TARDIS
7 Comments


