Category Archives: Living With Atopic Syndrome

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 24 Comments

Sexuality And Disability


In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading

Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog | 14 Comments

Epilepsy Won’t Hold Me Back Any More!


I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading

Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation | 14 Comments

The Importance Of Diagnosis


When you have any kind of physical or neurological “disorder” (and I use that term very loosely) it’s vital to have a proper diagnosis to keep that “disorder” from completely ruining your life. If there is no medication for your … Continue reading

Posted in "Mutants", Acceptance, Atopic Syndrome, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Fear, Heightened Awareness, Hyperacusis, Hyperkenesis, Living With Atopic Syndrome, Neurological, Not A Supermarket Tomato, Positivity, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychiatric, Psychological, Symptoms, Validation | 9 Comments

Insomnia And Epilepsy


I am never awake at this time of the morning. Well, not usually. Sometimes I simply wake for no good reason and can’t get back to sleep again. I’ll get back on that subject in a moment. Firstly I wanted … Continue reading

Posted in 2012, Alcohol, Attitudes, Creativity, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Engagement, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Hobbies, Homemaking, I Love Autism Kids, I Stitch So I Don't Stab Stupid People, Living With Asthma, Living With Atopic Syndrome, Medication, Positivity, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Seizures, Symptoms, Therapy | 3 Comments

Asthma And Atopic Syndrome


I was diagnosed with asthma when I was eleven years old. As a keen semi-pro swimmer and athelete, being forced to slow down was quite devastating. Then, when I was thirty, the asthma suddenly disappeared. I could cycle for miles … Continue reading

Posted in Asthma, Atopic Syndrome, Becotide, Chest Pains, Corticosteroid, Living With Asthma, Living With Atopic Syndrome, Salbutamol, Spacer Device, Symptoms, Ventolin | 7 Comments