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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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Recent Posts
The Rose Wine Lover
Rose Blossom
- @mothermercuryuk Okay, an OMG will suffice - have you seen the trailer this morning? EPIC!!!!!!! 1 day ago
- Every Whovian in the house shout "GERONIMO"! So excited for tonight's finale! #DoctorWho 1 day ago
- Wedding Bells wp.me/p1XQ3w-mH 5 days ago
- Let The Wind Blow Free wp.me/p1XQ3w-mD 6 days ago
- It's my 1st wedding anniversary tomorrow & I'm stuck in bed on antibiotics for a very painful infection... #irony 6 days ago
Proud Recipient of Blog Of The Year 2012
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Category Archives: Love
Wedding Bells
This time last year my Bridesmaid and I were being pampered by my lovely hairdresser, who had opened the salon especially for us, while my friend Lisa rushed around making tea and sandwiches for the assembled hoardes of Ghengis Kahn … Continue reading
Posted in Anniversaries, Family, Fandom, Friends, Homemaking, Love, Marriage, Tribble Towers
19 Comments
Growing Up Aged Thirty Nine And A Half
Growing up is something that I tried to avoid for all of my life until now. I inherited Romani blood which runs hot in my veins; I am an autumn child who has spent many years floating free with no … Continue reading
Posted in 2013, A Madman With A Box, Acceptance, Adventures, Always Look On The Bright Side Of Life, Attitudes, Disability, Fezes Are Cool, Geekiness, Health, Hobbies, Home, Homelessness, Hope, Love, Marriage, Memories, Navel Gazing, Neurological, Reminiscense, Romany Gypsy, Self, Tales Of The Rambling Rose, The Black Dog, Travel, Tribble Towers, Vulnerability, Women's Institute
20 Comments
The Ultimate Devotion
I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading
Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing
24 Comments
Sexuality And Disability
In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading
Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog
14 Comments
Epilepsy Won’t Hold Me Back Any More!
I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading
Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation
14 Comments
To Quote River Song: “It’s My Birthday Today”
I went to bed last night and have woken up another year older. Yes, ladies and gents, I am thirty-nine today – and not ashamed to admit it because I don’t feel it at all. Perhaps I can no longer … Continue reading
Posted in 2012, A Madman With A Box, Birthday, Cosmetics, Cross-stitch, Doctor Who, Family, Fandom, Firefly, Love, Other religions, Science Fiction, Thank You!, Tribble Towers, Wicca
27 Comments
“So; Aren’t Epilepsy And Autism Brain Diseases?”
If I had a penny for every time I’d been asked this question I would own the Bahamas and perhaps Singapore by now. I am always shocked by the level of ignorance when it comes to neurological conditions. I’m sorry, … Continue reading
Posted in "Mutants", Acceptance, Always Look On The Bright Side Of Life, Autism, Autism Awareness, Epilepsy, Epilepsy Awareness, Fight For Your Rights, Health, Heightened Awareness, Hyperacusis, Hyperkenesis, Injuries, Love, Marriage, Neurological, Not A Supermarket Tomato, Pack Mentality, Proud To Be Autistic, Proud To Be Me, Seizures, Self, Self-worth, The Ignorance Of Strangers
11 Comments
Five Years
Five years ago today I was watching the clock whilst waiting for my friend Jude to arrive from Brentford for the weekend, never even thinking that I’d find myself becoming D’s fiancee that night. In all honesty I don’t think … Continue reading
The Long Road Home
She stood on a chilly street underneath a streetlamp – the only source of heat. All she had was a small suitcase, an address and a postcode. Beyond that she had no idea what the future held. Her aggressor – … Continue reading
Wot I Did On My Holly Days (Or, Life Without Internet)
Our new modem arrived this morning, so Tribble Towers is fully powered and ready to go as far as the internet is concerned. However, during the last forty-eight hours, we’ve had to stumble blindly through that unknown territory which is: … Continue reading
Posted in 2012, Adapting, Always Look On The Bright Side Of Life, Anxiety, Attitudes, Blogging, Born This Way, Clothes And Cosplay, Cross-stitch, Disability, Dreams, Epilepsy, Fear, Food, Health, Hobbies, Home, Humour, I Stitch So I Don't Stab Stupid People, Jayne Hat, Jo Grant, Love, Marriage, Memories, Neurological, Nightmares, Rumination, Seizures, Self, Silliness, Tenacity, Tribble Towers
7 Comments


