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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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Recent Posts
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- An Open Letter To My Son wp.me/p1XQ3w-nw 6 hours ago
- Yatta! wp.me/s1XQ3w-yatta 3 days ago
- @marc_schuster Thank you! I'm rather pleased given that it's my first article! Thanks for sharing :) 4 days ago
- What Next For Doctor Who? whatculture.com/tv/what-next-f… via @whatculture 4 days ago
- @MickLeech1 I'm currently watching you on Stobart! Must be gutting when you have to sell the trucks! 1 week ago
Proud Recipient of Blog Of The Year 2012
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Category Archives: Marriage
Introspection
Since the sectioning of my son I seem to have retreated into myself a little bit. Emails have not been responded to – if they were ever looked at – and blogs have gone unvisited. I’ve been communicating mostly via … Continue reading
Posted in 2013, About The Carer, Adapting, Anxiety, Autism, Autistic Behaviours, Autistic Meltdown, Depression, Epilepsy, Facebook, Family, Friends, Health, Heightened Awareness, Hyperacusis, I Love Autism Kids, Love, Marriage, My Son, Neurological, Not A Supermarket Tomato, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Psychological, Reading, Real Life Horror, Sensory Overload, Social Anxiety, Strength, The Black Dog, The Dark Side Of Autism, Vulnerability, Women's Institute
8 Comments
Wedding Bells
This time last year my Bridesmaid and I were being pampered by my lovely hairdresser, who had opened the salon especially for us, while my friend Lisa rushed around making tea and sandwiches for the assembled hoardes of Ghengis Kahn … Continue reading
Posted in Anniversaries, Family, Fandom, Friends, Homemaking, Love, Marriage, Tribble Towers
19 Comments
Stubborn
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca
12 Comments
Growing Up Aged Thirty Nine And A Half
Growing up is something that I tried to avoid for all of my life until now. I inherited Romani blood which runs hot in my veins; I am an autumn child who has spent many years floating free with no … Continue reading
Posted in 2013, A Madman With A Box, Acceptance, Adventures, Always Look On The Bright Side Of Life, Attitudes, Disability, Fezes Are Cool, Geekiness, Health, Hobbies, Home, Homelessness, Hope, Love, Marriage, Memories, Navel Gazing, Neurological, Reminiscense, Romany Gypsy, Self, Tales Of The Rambling Rose, The Black Dog, Travel, Tribble Towers, Vulnerability, Women's Institute
20 Comments
Epilepsy and Blogging
Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading
Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength
12 Comments
Where Did You Think You’d Be?
D just wandered into the bedroom (yes, I’m still bedbound and considering x-rays or something) and asked me a question that prompted me to blog: “If someone had told you seven years ago that you would end up in a … Continue reading
Posted in 2013, Curiosity, guitar, Home, Homemaking, Marriage, Memories, Navel Gazing, Nostalgia, Paganism, Spirited Away, Tribble Towers
10 Comments
Turning Japanese And Cross-Stitch Flowers
I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading
Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures
26 Comments
The Ultimate Devotion
I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading
Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing
24 Comments
Sexuality And Disability
In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading
Posted in Autism, Epilepsy, Neurological, Illness, Health, Love, Body Image, Desirability, Disability, Attitudes, Self, Marriage, Born This Way, "Mutants", Status Epilepticus, Seizures, Medication, The Black Dog, Epilepsy Awareness, Living With Asthma, Living With Atopic Syndrome, Not A Supermarket Tomato, Autistic Behaviours, Autistic Meltdown, Sexuality, Sensuality, Bodily Functions, Autistic Temperament, 2013
14 Comments
An Overview Of 2012
Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading
Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule
21 Comments


