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Press EnquiriesI can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.
That about.me Thingy
Life On The Edge Of The Sofa
I'm a 42 year old writer, living with my husband and a large collection of tarantulas in Essex. I have an adult son with severe autism and learning disabilities, I'm a media volunteer for Epilepsy Action, and - in spite of a disability preventing me from continuing in my career as a care assistant (I had also hoped to train as a staff nurse) - I give back what I can to my community by volunteering at the local library a few times a week. I am passionate about human and animals rights, and believe that all lives matter. I'm known locally as the eccentric Doctor Who fan who always wears fandom t-shirts and a smile. Oh; I'm also known as Spider Lady.
I enjoy baking, reading and gardening, and I have extensive ways in which to use garden ingredients for pickles and sauces. I've spent this year regaining my health after a near-fatal illness last summer, and encourage others to embrace life in every way they can.
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Category Archives: “Mutants”
That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted – sometimes … Continue reading
This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading
The title I’ve selected for this blog is something that I said during a film interview. I am unable to share the video here because I’ve not yet received permission, but it was a video filmed by Epilepsy Action last … Continue reading
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading
Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading
As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it towards the shore … Continue reading
That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading