Category Archives: “Mutants”

Staring Without Seeing, And Other Stories


That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted – sometimes … Continue reading

Posted in "Mutants", 2013, Adapting, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Body Image, Boobs, Born This Way, Disability, Doctor Who, English Hospitals, Epilepsy, Epilepsy Awareness, Health, Heightened Awareness, Injuries, Kindle | 4 Comments

“You Should Get A Job…”


“… And then you’d be getting paid for something worthwhile complaining about.” I looked at her; a pretty woman with blonde hair, a stinky attitude and a smug expression on her face. I stand some inches taller than she, and … Continue reading

Posted in "Mutants", 2013, Always Look On The Bright Side Of Life, Animal Neglect, Animals, Attitudes, Barking, Born This Way, Bullies, Bullying, Cruelty, Disability, Disability Aids, Disablism, Discomfort, Dogs, Dreams, Emotional Pain, Epilepsy, Epilepsy Action, Epilepsy Awareness, Injuries, Medication, Neurological, Not A Supermarket Tomato, Nuisance, People, Personal Goals, Pets, Proud To Be Me, Rant, Seizures, Self, Stupidity Gets A Tag Now, The Ignorance Of Strangers, Wheelchairs | 36 Comments

Frank La Rocca, Epilepsy Nurse


This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading

Posted in "Mutants", 2013, Accomplishments, Always Look On The Bright Side Of Life, Book, butimbeautiful, Deeper, Disability, English Hospitals, Epilepsy, Frank La Rocca, Friends, Health, Kindle, Maldon, Medication, Milestones, Neurological, Not A Supermarket Tomato, Positivity, Progress, Proud To Be Me, Seizures | 5 Comments

Epilepsy: Don’t Let It Eat You


The title I’ve selected for this blog is something that I said during a film interview. I am unable to share the video here because I’ve not yet received permission, but it was a video filmed by Epilepsy Action last … Continue reading

Posted in "Mutants", 2013, Acceptance, Attitudes, Epilepsy, Epilepsy Action, Epilepsy Awareness | 15 Comments

Stubborn


Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

Turning Japanese And Cross-Stitch Flowers


I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading

Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures | 26 Comments

The Fall Of An Epileptic


Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

Epileptic Wave


As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it towards the shore … Continue reading

Posted in "Mutants", Born This Way, Creative Writing, Epilepsy, Neurological, Seizures | 5 Comments

How I Saved A Life


Disclaimer: This piece is not about blowing my own trumpet. I am writing this to prove a point – that people with disabilities can still make an important contribution to society. Colin Brewer, councillor for a Cornwall constituency, believes that … Continue reading

Posted in "Mutants", Abuse, Alzheimers, Attitudes, Autism, Autism Awareness, Born This Way, Bullying, Colin Brewer, Dementia, Disability, Epilepsy, Epilepsy Awareness, Harrassment, Neurological, Not A Supermarket Tomato, Proud To Be Autistic, Proud To Be Me, Real Life Horror, The Ignorance Of Strangers, Unacceptable Behaviour | 32 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 24 Comments