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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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Category Archives: Neurological
Baby Love
In a small maternity delivery room in Cheltenham, long ago, an exhausted young woman lay in a bed soaked with blood, sweat, amniotic fluid and tears; she had in her arms the most precious and beautiful thing that she had … Continue reading
Autistic Son Psyched In A Bad Way
I have mentioned my autistic son many times before. I’ve shared the good times, the bad times, some photographs of my handsome, cheeky little man. A young man who is basically thoughtful, sweet-natured, warm hearted, kind, handsome and funny. He … Continue reading
Stubborn
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca
12 Comments
Growing Up Aged Thirty Nine And A Half
Growing up is something that I tried to avoid for all of my life until now. I inherited Romani blood which runs hot in my veins; I am an autumn child who has spent many years floating free with no … Continue reading
Posted in 2013, A Madman With A Box, Acceptance, Adventures, Always Look On The Bright Side Of Life, Attitudes, Disability, Fezes Are Cool, Geekiness, Health, Hobbies, Home, Homelessness, Hope, Love, Marriage, Memories, Navel Gazing, Neurological, Reminiscense, Romany Gypsy, Self, Tales Of The Rambling Rose, The Black Dog, Travel, Tribble Towers, Vulnerability, Women's Institute
20 Comments
Epilepsy and Blogging
Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading
Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength
12 Comments
Turning Japanese And Cross-Stitch Flowers
I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading
Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures
26 Comments
The Fall Of An Epileptic
Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading
Social Anxiety
“I don’t think they like me.” “Well, they seemed to last time I collected you.” “I don’t know; I don’t think they really know what to make of me.” My husband and I have this same conversation every month when … Continue reading
Posted in 2013, Accomplishments, Adapting, Always Look On The Bright Side Of Life, Anxiety, Aspirations, Attitudes, Autism, Born This Way, Chrysalis, Confidence, Emerging Butterfly, Fear, Friends, Hobbies, Home, Home Crafts, Kitchen Witchy, Milestones, Neurological, Not A Supermarket Tomato, Personal Goals, Pickling, Positivity, Progress, Proud To Be Autistic, Self, Self-worth, Social Anxiety, Tribble Towers, Women's Institute
23 Comments
The Ultimate Devotion
I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading
Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing
24 Comments
Epileptic Wave
As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it towards the shore … Continue reading
Posted in "Mutants", Born This Way, Creative Writing, Epilepsy, Neurological, Seizures
5 Comments


