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I can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.Epilepsy Action
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- An Open Letter To My Son wp.me/p1XQ3w-nw 21 hours ago
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- @marc_schuster Thank you! I'm rather pleased given that it's my first article! Thanks for sharing :) 5 days ago
- What Next For Doctor Who? whatculture.com/tv/what-next-f… via @whatculture 5 days ago
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Category Archives: Refusing To Be Beaten
Stubborn
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca
12 Comments
An Overview Of 2012
Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading
Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule
21 Comments
Epilepsy Won’t Hold Me Back Any More!
I spent much of yesterday attempting to compose my thoughts and feelings concerning my meeting with Sheila at Compass and what was discussed there. I couldn’t really piece it all together, so instead I gave you some fluff about my … Continue reading
Posted in 2012, Accomplishments, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Aspirations, Attitudes, Born This Way, Choose Life, Christmas, Confidence, Cookery, Cooking, Counselling, Creativity, Cross-stitch, Disabled Gardening, Discomfort, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epiphany, Exercise, Family, Fear, Food, Food Experimentation, Friends, Health, Hobbies, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Life Plans, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Memories, Milestones, Navel Gazing, Neurological, Non Fiction, Pain, Patience Is A Virtue, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Strength, Tenacity, Therapy, Validation
14 Comments
The Lights Are On And Somebody’s Home!
I would usually blog about this at Thoroughly Disordered – my blog about my struggles with alcohol and anorexia – but I felt that this was something to share on my main blog, because for me it is a major … Continue reading
Epilepsy And Lifestyle Changes
As blogged at Thoroughly Disordered yesterday, I need to make some serious lifestyle changes. I chose not to put it all here on my main blog because I felt that it didn’t really belong, but it’s probably still worth a … Continue reading
Discworld Convention, Water Fights And Laughing Through Epilepsy
The husband-shape and I are now back on Roundworld, after having fun at the Discworld Convention. Truly, it’s wonderful to escape the real world every couple of years and catch up with old friends whilst meeting new ones. The Discworld … Continue reading
Posted in Accomplishments, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Clothes And Cosplay, Confidence, Disability, Discworld, English Hospitals, Epilepsy, Epilepsy Awareness, Excitement, Family, Fandom, Friends, Health, Injuries, Jo Grant, Katy Manning, Kitchen Witchy, Neurological, Positivity, Proud To Be Me, Refusing To Be Beaten, Seizures, Sir Terry Pratchett, Status Epilepticus, Tales Of The Rambling Rose, The Things I Do In The Name Of Fandom!
16 Comments
In Which Fandom Proves Dangerous To My Health!
Sorry for the radio silence recently; I’m catching up with all the emails (several thousand!) and blogs that I possibly can – and have learned my lesson for neglecting my inbox and WordPress. Never again, aside from when I’m at … Continue reading
Gypsy Road – Part Two
How Did I Meet My Ex-Husband Anyway? He was on a street corner late at night, guitar in hand and singing his heart out. A lonely busker, out past midnight in the hope that clubbers would drop him some money.
Posted in Abusive Behaviour, Acceptance, Adapting, Always Look On The Bright Side Of Life, Fear, Fight For Your Rights, Hidden Homeless, Homelessness, Living On The Edge, Marriage, Memories, Positivity, Proud To Be Me, Refusing To Be Beaten, Romany Gypsy, Self, Strength, Tales Of The Rambling Rose, Tenacity, Travel, Travelling
19 Comments
Feedback From Epilepsy Action
Shortly after submitting the donations from the wedding I recieved an email from one of the team at Epilepsy Action, thanking me for thinking of them on my special day. The lady who had emailed me also wanted to know … Continue reading
Autism, China In Your Hand And Frankenstein’s Creation
Following on from yesterday’s Flashblog event for Autism Awareness month (and submissions are still flooding in), a friend mentioned this morning that she loves T’Pau’s China In Your Hand because it was playing at the exact moment that her son … Continue reading


