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Press EnquiriesI can be contacted via this blog, Twitter, Facebook or email. I am happy to be interviewed by email, over the phone, in person and on film. My main fields are epilepsy, autism, living with disability and issues facing disabled people.
That about.me Thingy
Life On The Edge Of The Sofa
I'm a 42 year old writer, living with my husband and a large collection of tarantulas in Essex. I have an adult son with severe autism and learning disabilities, I'm a media volunteer for Epilepsy Action, and - in spite of a disability preventing me from continuing in my career as a care assistant (I had also hoped to train as a staff nurse) - I give back what I can to my community by volunteering at the local library a few times a week. I am passionate about human and animals rights, and believe that all lives matter. I'm known locally as the eccentric Doctor Who fan who always wears fandom t-shirts and a smile. Oh; I'm also known as Spider Lady.
I enjoy baking, reading and gardening, and I have extensive ways in which to use garden ingredients for pickles and sauces. I've spent this year regaining my health after a near-fatal illness last summer, and encourage others to embrace life in every way they can.
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The Big Blog Collection
Category Archives: Seizures
In the bad old days (many years ago now) I subsisted on tea, cigarettes and rum. In slightly better days this changed to tea and wine. Now it’s water, the occasional cup of tea and wine. I’m still not eating … Continue reading
After being incredibly remiss with this blog since breaking my arm in August, my muse has finally poked me to write up about the highlights of my year and attempt to catch up with you all. It’s one thing to … Continue reading
This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading
Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading
I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading
Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading
I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading