Category Archives: Seizures

Getting Fitter To Get Better


In the bad old days (many years ago now) I subsisted on tea, cigarettes and rum. In slightly better days this changed to tea and wine. Now it’s water, the occasional cup of tea and wine. I’m still not eating … Continue reading

Posted in 2014, Always Look On The Bright Side Of Life, Attitudes, Body Image, Body Parts, Diet And Fitness, Disability, Disability Aids, Disabled Gardening, Discomfort, EDNOS, Epilepsy, Exercise, Food, Health, Neurological, Refusing To Be Beaten, Resolutions, Seizures | 18 Comments

Of Shoes And Strings And Sealing Wax, And A Ton Of Navel Fluff


After being incredibly remiss with this blog since breaking my arm in August, my muse has finally poked me to write up about the highlights of my year and attempt to catch up with you all. It’s one thing to … Continue reading

Posted in 2013, Accomplishments, Adventures, Adventures In Preserves, Always Look On The Bright Side Of Life, Autism, Blogging, Book, Born This Way, Christmas, Diet And Fitness, Disability, Epilepsy, Family, Five Minutes Of Fame, Gardening, Good People, Health, Hobbies, Home, I Love Autism Kids, Injuries, Kitchen Witchy, Love, Mason Kayne, My Son, Navel Gazing, Not A Supermarket Tomato, Pets, Pickling, Positivity, Proud Parent Of An Autistic Child, Psychiatric, Publishing, Reminiscense, Seizures, Spiders, The Writing Industry, Tribble Towers, Wedding | 9 Comments

“You Should Get A Job…”


“… And then you’d be getting paid for something worthwhile complaining about.” I looked at her; a pretty woman with blonde hair, a stinky attitude and a smug expression on her face. I stand some inches taller than she, and … Continue reading

Posted in "Mutants", 2013, Always Look On The Bright Side Of Life, Animal Neglect, Animals, Attitudes, Barking, Born This Way, Bullies, Bullying, Cruelty, Disability, Disability Aids, Disablism, Discomfort, Dogs, Dreams, Emotional Pain, Epilepsy, Epilepsy Action, Epilepsy Awareness, Injuries, Medication, Neurological, Not A Supermarket Tomato, Nuisance, People, Personal Goals, Pets, Proud To Be Me, Rant, Seizures, Self, Stupidity Gets A Tag Now, The Ignorance Of Strangers, Wheelchairs | 36 Comments

Frank La Rocca, Epilepsy Nurse


This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a message a … Continue reading

Posted in "Mutants", 2013, Accomplishments, Always Look On The Bright Side Of Life, Book, butimbeautiful, Deeper, Disability, English Hospitals, Epilepsy, Frank La Rocca, Friends, Health, Kindle, Maldon, Medication, Milestones, Neurological, Not A Supermarket Tomato, Positivity, Progress, Proud To Be Me, Seizures | 5 Comments

Stubborn


Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a … Continue reading

Posted in "Mutants", 2013, Acceptance, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Marriage, National Epilepsy Week, Neurological, Refusing To Be Beaten, Seizures, Viva La Rocca | 12 Comments

Epilepsy and Blogging


Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading

Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength | 14 Comments

Turning Japanese And Cross-Stitch Flowers


I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading

Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures | 26 Comments

The Fall Of An Epileptic


Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

The Ultimate Devotion


I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading

Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing | 24 Comments

Epileptic Wave


As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it towards the shore … Continue reading

Posted in "Mutants", Born This Way, Creative Writing, Epilepsy, Neurological, Seizures | 5 Comments